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Mark Senak who writes the EyeonFDA blog has compiled a list of the life sciences companies that presently have a Twitter account and use it. While there are only 12 companies on the list, he provides a nice commentary on their use and makes some recommendations for improvement.

Although I am a staunch supporter of the use of social media in the life sciences, it appears to me that the discussion about its use has been somewhat muted since the FDA convened a public hearing on the topic last month. I suspect that many of the companies and stakeholders who participated in the discussion prior to the FDA meeting are presently in “wait and see” mode. However, don’t be surprised if the social media guidance issued by FDA is lacking and excruciatingly wanting!!!! For those of you who may not be familiar with the ways in which the agency operates, its regulators tend to craft guidance and regulation that are broad, loosely defined and open to interpretation. The agency intentionally crafts its guidance and regulations this way because it doesn’t want its rules and regulations to be “literally interpreted” by companies and other stakeholders. Generally speaking, its regulations represent the “minimum” requirements that must be met in order to insure regulatory compliance. In other words, there is no upper limit on what companies can do to insure compliance but there certainly is a minimum requirement that must be met to avoid regulatory sanctions and penalties. As one lawyer who used to work for the agency shared with me recently, “FDA crafts the regulations but it is left to the companies and courts to interpret them.”

Most of the current discussions about social media and the life sciences industry primarily focus on its use as marketing and promotional vehicle. And, as many of you may already know, FDA isn’t exactly keen or pleased with the current marketing and advertising strategies and practices utilized by a sizeable number of life sciences companies. Perhaps a shift away from marketing and advertising discussions to more regulatory-friendly and practical applications like clinical trials recruitment and public outreach may lead to a more rapid uptake of social media by FDA and life sciences companies? Just sayin’

Until next time...

Good Luck and Good Tweeting!!!!

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After having looked at pharma’s use of twitter, I decided to also get a feel for how pharma is engaging with facebook so far. Three main uses emerge: 1. connecting employees, 2. attracting talent and 3. promoting disease awareness or treatment adherence

1. Connecting current and ex- employees definately has the most activity. Numerous official and unofficial  groups or fan pages bring together the employees of most of the top pharma companies. For the purpose of this analysis let me concentrate the largest groups with apparent corporate endorsement (ie. use of official logo, links to company website and corporate messaging in group purpose).

Sanofi-Aventis, Novartis, Boehringer Ingelheim, Pfizer/Wyeth and Roche seem to be leading the pack in terms of activity. Sanofi and Novartis both set up official fan pages with over one thousand members. Lots of employee activism as well at  Boehringer Ingelheim, Roche, Novartis and Wyeth with facebook groups of 500+ members. (Check out this video from the official BI facebook group, just for fun).

Other, not so active groups: AstraZeneca (also have an English and French fan page), Teva, GSK (French fan page), Lilly, JNJ, and Pfizer.

Interestingly, there are a number of unofficial “Pfizer“ groups expressing negative sentiment towards the company (most of it coming from layed off employees). Pfizer is also the only company that someone set up a group about them, called “conversations of Pfizer“. Not much activity unfortunately, but intersting concept nevertheless.

Another strange aside: Egytian and Turkish country groups seem to exist for basically every pharma company I researched, must be a cultural thing?

2. Regarding attracting talent, there is an overwhelming number of student, intern and training program groups for all companies; most of them probably not official. GSK seems to have the largest number of student groups, a lot of them private. Merck also stands out for its excellent Merck Careers fan page, well done, I think, but not much activity, yet.

3. Promoting disesase awareness is where I believe things finally get interesting for patients. Examples of pharma companies using facebook to drive disease awareness and treatment adherence aare not bountiful, but I did find two great examples.

The first example is the ADHD Moms group, sponsored by McNeil Pediatrics, a JNJ company. The group counts close to 8000 members, but, for me, it is not these numbers that make the group exciting. By setting up this fan page, McNeil has done a great job at creating an environment in which patients/caregivers can receive valuable information concerning treatment management and adherence, while staying within the pharma “comfort zone“.

The concept is simple. One Pediatrician and three ADHD moms, as well as “guest writers“ discuss topics of importance to raising a child with ADHD. There are polls to each topic to get the audience’s feedback, while avoiding  thorny legal issues such as adverse event reporting or off-label usage. The site also offers a podcast series and links to prominent ADHD organizaions.

The second example comes from Novartis Zometa product. It is called: Marica Strassman Takes Role as Patient Advocate. In this group, celebrity and breast cancer survivor Marcia Strassman takes on the mission to “inform breast cancer patients and caregivers about the importance of following treatment regiments outlined by their doctors “. Thus a clear focus on promoting disease awareness and treatment adherence.

The setup up is also highly transparant, clearly disclosing Zometa sponsorship with links to the Zometa homepage, product information and the facebook groupe mission:“ To educate patients with advanced breast cancer and other metastatic cancers about the risks and benefits of Zometa.“

This fan page, like the ADHD example, features links to the most prominent cancer organizations as a further resources for patients. Also, similar to the ADHD page, this site does not allow any comments from its members to prevent any legal issues.

So overall, highly encouraging signs that pharma is starting to use facebook. Most companies still seem to first experiment with more internally focused groups, but some are starting to “test the waters“ and to engage with patients on important topics like disease awareness and treatment adherence.

Silja Chouquet is the owner and CEO of whydot GmbH, an agency specialized in social media consulting, coaching and training. Her fields of expertise are the creation of patient-focused social media communications and marketing campaigns. She runs the whydotpharma blog where she discusses social media and the life sciences and other pharma-related topics.

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